The Organ and Tissue Authority (OTA) conducts the National Donor Family Study to obtain information on family experiences of organ and tissue donation for transplantation.
The study collects feedback on the family’s experience from early interactions with hospital and DonateLife staff and initial donation conversations, to the follow up support provided to families after a donation decision was made. This insight provides valuable evidence for the ongoing review and enhancement of the care and support provided to families before, during and after donation.
The OTA sincerely thanks the family members who volunteered to participate in this study and share their experience.
Wave 2 (2012 and 2013)
The Wave 2 study involved 285 families who made a donation decision in 2012 and 2013. A total of 319 individual family members (representing 263 donor families who consented to donation) and 12 individuals (representing 12 families) who declined donation participated.
Findings from the Wave 2 study are available below:
Wave 1 (2010 and 2011)
The Wave 1 study involved 132 families who made a donation decision in 2010 and 2011. A total of 186 individual family members participated including one family member who declined donation.
Findings from the Wave 1 study are available below:
