The Organ and Tissue Authority (OTA) commissions the conduct of the National Donor Family Study to obtain information on family experiences of organ and tissue donation for transplantation.
The study collects feedback on the family’s experience from early interactions with hospital and DonateLife staff and initial donation conversations, to the follow up support provided to families after donation. This insight provides valuable evidence for the ongoing review and enhancement of the care and support provided to families before, during and after donation.
The OTA sincerely thanks the family members who volunteered to participate in this study and share their experience.
Wave 4 (2016 and 2017)
The Wave 4 study involved 372 families who made a donation decision in 2016 and 2017. A total of 429 individual family members participated, representing 348 families who consented to donation and 24 families who declined donation.
Findings from the Wave 4 study are available below:
Wave 3 (2014 and 2015)
The Wave 3 study involved 261 families who made a donation decision in 2014 and 2015. A total of 290 individual family members participated, representing 229 families who consented to donation and 32 families who declined donation.
Findings from the Wave 3 study are available below:
Wave 2 (2012 and 2013)
The Wave 2 study involved 285 families who made a donation decision in 2012 and 2013. A total of 319 individual family members participated, representing 263 families who consented to donation and 12 families who declined donation.
Findings from the Wave 2 study are available below:
Wave 1 (2010 and 2011)
The Wave 1 study involved 132 families who made a donation decision in 2010 and 2011. A total of 186 individual family members participated, representing 131 families who consented to donation and one family who declined donation.
Findings from the Wave 1 study are available below:
